Your support to ELA
Through its first edition, the Désalpe Reichenbach is actively engaged in raising funds for ELA Switzerland. The all-public concept races combined with a great offfer of entertainment and public transports for families and accompanying people aims to bring together the largest number of people on the Emosson dam. This event will also be an opportunity to raise awarness about ELA’s cause.
Established in 2000, ELA Switzerland is a national association managed by parents whose diseased children are motivated to overcome these rare genetic diseases who destroy myelin (the cellul of nerves) of the central nervous system. ELA Switzerland is a link in between all leudodystrophies and a solidarity network for the families. It is also part of an international network of information and research trhough constructive and regular relations with its counterparts around the world. Click here to consult ELA’s mission. More information on the association: http://www.ela-asso.ch.
How to support ELA?